Resources for Caregivers

Being a caregiver can be a stressful and demanding job, yet to those with EB, the role is truly a critical lifeline. We’ve gathered a list of some online resources that may be worth checking out. These sites can offer helpful information, links to organizations that specifically provide support to caregivers, and practical tips about managing the care of others, stress management and self-care, as well as other relevant topics.

*The following links are provided as a courtesy to the EB Resource community for informational purposes only. The suggestions referenced are not intended to be a substitute for the advice of a medical care or mental health care provider, nor should it be used to seek help in a medical emergency. If you have any questions, please consult your personal health care provider.

Do you know of any additional resources to suggest to any caregivers who may be reading? If so, please comment here at this blog or at our EB Resource Facebook community and thanks in advance.

The Rosalynn Carter Institute for Caregiving
The Family Caregiver Alliance
Family Caregiving 101
“Taking Care of You: Support for Caregivers,”
The National Family Caregivers Association
Caring Today Magazine
Today’s Caregiver Magazine
Caregiving in America Magazine

Related Posts:
100 Links for EB Families
Support Networks vs. Support Groups
Becoming a Proactive Caregiver

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