Celebrating Moms Making a Difference

With Mother’s Day around the corner, we thought it might be nice to take this time to wish all of the moms in the EB Resource community a very special day and celebrate the great work that EB moms are doing to help spread the word about the disease, as well as share with others the need for research support. Every time a mom of a child with EB raises her voice, whether she too was diagnosed with the disease or not, she has the potential to seriously impact the lives of these patients, young and old, and their families.

We want to mention and thank the following trio of moms for all that they do to help make a difference. And what do all of these women have in common? Each is sharing her personal story in her own words through blogs that can serve as powerful tools to reach out to the community to educate others about EB, support other families facing similar challenges, and get people talking. That’s why they join our growing list of EB Champions.


“EB”ing A Mommy, Courtney Roth Blog

“EB”ing a Mommy, Tangi Lifestyles Magazine (April/May 2011)

Before the Morning, Patrice Williams Blog

Four Busy Bees and Two Little Butterflies, Sara Denslaw Blog

In Garrett’s Memory

Related Posts:

We Appreciate These EB Champions

We “Heart” These EB Champions

Thankful for These EB Voices

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